Long ass post about all my medical issues.

[aisalynn]

Hey, all.

I know I've been absent on LJ here lately (And right in the middle of my 30 Days of TV meme. See I told you guys I wouldn't be able to keep up with that thing every day.) but it's been a real stressful few weeks.

I've had like, six doctor's appointments in the past two weeks, my blood drawn for tests four times, an adrenal stimulus test and an MRI.

I'm still exhausted all the time, and I generally feel like crap, but my Endocrinologist says my thyroid levels are as perfect as they are going to get, so all my doctors (and I have several, now) are exploring what else could be wrong. My cortisol was low (1.5. I think my doctor said the normal levels for people were like, 6-10) so I took the adrenal stimulus test to see if my adrenal gland would respond to an injection of ACTH. Basically, they were looking for Addison's disease.

Well, my adrenal gland did respond, but my ACTH was low so they're looking for a possible tumor (benign, most likely) in my pituitary gland that could be stopping it from working properly. That's what the MRI was for, though I haven't gotten the results of that yet.

My vitamin B12 was very low as well, and I guess they ran a test of celiac's disease (a disease that stops your body from absorbing nutrients from food, and makes it so you can't tolerate gluton) which was positive, but they won't know if I actually have it until they scope my small intestine. (Yikes!)

Vitamin D is still low, and whatever test they run for possible food allergies was positive as well.

So basically, I have a bunch of stuff wrong with me, but we haven't found the underlying cause yet.

I feel like I'm on a House episode. Only, I hope my life doesn't run the same course as one of the episodes--I don't feel like going through A) cardiac arrest B) anaphylactic shock or C) paralysis before they finally figure out what's wrong with me.

Or any of those weird pysch symptoms either. I can do without the hallucinations, thanks.


Anyway, my life is kind of sucking right now, and I have a job interview later today but I'm not sure how I'm supposed to work eight hours a day, five days a week (no matter how good the pay is) when I can't stay awake for more than five hours straight without falling asleep where I'm standing.

I want this job, because I want to get on with my life, but I don't know if I can do it.

*sigh*


Oh, and that waiter guy I went out with? Yeah, that's not going to happen. Came on WAY to strong, what with the 200 text messages he sent me within the first FIVE days of knowing him, and the three phone calls a day, and how if I didn't text him back within the hour he'd send me more text messages apologizing for saying something wrong, and the fact he started contacting my friends to figure out gifts to give me next time he saw me--all within the first week of knowing him. All of this happened the same time as all the health crap, and it really just stressed me out, so I had to end it.

Unfortunately, the guy can't seem to take no for an answer. He keeps calling and texting me. All. The. Time. He's driving me up the wall.


Well, that's your update on my life, Flist. I have been trying to keep up with my friends list, though I haven't been commenting much, I'm afraid. I've just felt kinda blah here, lately, you know what I mean?

Comments

[ashdoode.livejournal.com]

AWWW, HUN!! <3

I'm so sorry things are bad right now! My thoughts and prayers are with you and I really do hope the doctors find out what's wrong! :(

Ugh, clingy!boys are such a turn-off. Good on you for ending it! You don't need to deal with that alongside all the stuff you already have on your plate! :(

<3333 Much love!

[aisalynn.livejournal.com]

Thank you. :) *hugs*

Ugh, clingy!boys are such a turn-off.

Yeah, they really are. Especially for someone as anti-social as I am. I like my space. I need it. Sure, I realize that to have any type of normal human relationship I need to compromise on that (especially romantic ones) but he was trying to stay contact with me all the time. It was just not going to work out.

[jebbypal]

Was the allergy tests (the non-celiac ones) by blood or by skin test? I'd say see what's going on with the adrenal issues and then query the docs if an adrenal issue that big could have affected the outcome of some of the allergy tests, especially when compounded by the vitamin deficiencies.

[aisalynn.livejournal.com]

By blood. They're not too worried about the allergy stuff right now, I don't think. They're mostly looking into the pituitary and celiac possibilities.

[slaymesoftly.livejournal.com]

I have a friend who was miserable for years until they finally diagnosed a gluten problem. Now, although she's had to make big changes in diet and learn to cook all over again, she feels great. Anyway, it sounds like they're working hard to identify the problem(s) and that it's likely to be something that can be cured or managed, so crossing my fingers for you that you feel better soon.

[aisalynn.livejournal.com]

Ugh. I really hope it's not celiac's. I mean, I don't want it to be something worse, but I don't want to have to change my whole diet either. I like bread and all those delicious food items made with flour, I would like to keep eating them, if possible. I've also been told that after going off gluten for a while, accidentally eating just a little bit of it can be extremely painful, and I'm not looking forward to being paranoid about my food for the rest of my life.

That being said, if I do have it, I will of course change my diet, I'm sick of feeling like this. I just...hope I don't, that's all.

[empresspatti.livejournal.com]

It took two years of hell, but one of my oldest friends was finally diagnosed with celiac's disease (she had a lot of your issues).

It took almost another year to check labels, find beer :) and everything else she needed to know to get gluten out of her diet. She's thriving now.

I hope you come through this soon with a solid medical diagnosis and path to health. You've been miserable for a long time and deserve a big ol honking break from the universe!

[cantarina]

I was tested for Celiac's disease a few years back; the scope isn't fun, but it's not so terrible either, promise! Good luck with all of this medical runaround; I really hope they can get you sorted out. I hate the run-around part while you feel awful and have no answers.

Also, bummer about the guy, but it sounds like you made the right call. Seriously, seriously clingy, especially he's still calling and texting. I wish you could block phone numbers as easily as you can block users online.

[penny-lane-42.livejournal.com]

Oh, hon, that sounds absolutely awful. I'm so sorry you're having to go through this, and I hope they find out what's wrong very soon and figure out a way to fix it. And you're right--it does sound like an episode of House, except that the solution won't be found after a crazy doctor makes you confess that you've been lying about something all along. ;D

*hugs*

As for waiter guy: with guys who won't take no for an answer, the only way to get them to stop is to ignore them completely. At least, that's what Gavin DeBecker says in The Gift of Fear.

[mysticalchild_isis]

I'm so sorry- it just sucks so hard when they don't know what's wrong. Even when they do, it always seems to take so long to get fully better. I'll keep my fingers crossed for you.

That waiter needs to stop. That's stalking behavior, and you should tell him as much, and threaten to report him to the police if he doesn't stop harassing you.

[canyon_deye.livejournal.com]

omg that sounds really bad. I'm so sorry and I hope they figure out what's wrong soon (and without House sort of dramatics).

200 texts in 5 days? That's a bit icky. :/

[cordykitten]

*hugs* But I hope your doctor is like Dr. House and finding what's wrong. And even more I hope it's something that can be treated.
Good luck with everything. If only the job interview what be when you are feeling better / are healthy again.

The waiter guy? Annoying, so many text messages.

[louise39.livejournal.com]

:hugs: hope the tests come through with something that will let you go on with your life. Knowledge is power, they say.

You don't need a dependent aggravation. Cut this guy off completely and good luck with the next.