It took two years of hell, but one of my oldest friends was finally diagnosed with celiac's disease (she had a lot of your issues).

It took almost another year to check labels, find beer :) and everything else she needed to know to get gluten out of her diet. She's thriving now.

I hope you come through this soon with a solid medical diagnosis and path to health. You've been miserable for a long time and deserve a big ol honking break from the universe!